MUSC Division of Nephrology Designated an ADPKD Center of Excellence by the PKD Foundation

The Polycystic Kidney Disease (PKD) Foundation has designated the MUSC Division of Nephology a PKD Foundation Center of Excellence in ADPKD (autosomal dominant polycystic kidney disease).

ADPKD is one of the most common, life-threatening genetic diseases. In ADPKD, fluid-filled cysts develop and enlarge in both kidneys, eventually leading to kidney failure. The PKD Foundation—the only organization in the U.S. dedicated solely to finding treatments and a cure for PKD by advancing research, education, advocacy, support, and awareness—has announced the formation of The PKD Foundation Centers of Excellence (COE). This program has been built upon the belief that the best way to provide ADPKD-centered care is through patient-focused, comprehensive care with the coordination and support of a patient navigation team.

Through an extensive process in which applications were reviewed by the COE Advisory Group made up of clinicians and patient stakeholders, MUSC was selected as one of 28 research institutions nationwide to receive the recognition as an ADPKD Centers of Excellence.

The PKD Foundation COE Advisory Group noted the following strengths when reviewing MUSC’s designation application:

“This clinic's application provided evidence that not only were all requirements met, but in each area, there were additional strengths beyond the requirements. Clinical care appears to be on point. Decent clinical research as well … Clinical care is patient-centered and comprehensive. They have TKV, Tolvaptan, experienced nephrologist and decent clinical volume. They also seem to be dedicated to providing access to ESRD strategies when needed.”

We’re proud to be a PKD Foundation Center of Excellence! When you have ADPKD, where you go matters. That’s why we aligned with the PKD Foundation to commit to providing excellent ADPKD-specific care. Learn more about what it means to be a PKD Foundation Center of Excellence.