Because of its subjective nature and poor correlation with observer-rated measures of disfigurement, head and neck cancer-related body image disturbance is optimally measured by a patient-reported outcome measure (PROM). To address the lack of psychometrically sound PROMs that could be used to provide a comprehensive assessment of HNC-related BID, we developed the IMAGE-HN (Inventory to Measure and Assess imaGe disturbancE–Head & Neck). IMAGE-HN is a novel, multidomain PROM for the assessment of HNC-related body image concerns in the clinical and research settings that was developed using rigorous psychometric methods and following the Patient-Reported Outcomes Measurement Information System (PROMIS) methodology.

The IMAGE-HN is a psychometrically sound 24-item PROM of head and neck cancer-related body image disturbance consisting of a global scale and 4 subscales: (1) other-oriented appearance concerns; (2) personal dissatisfaction with appearance; (3) distress with functional impairments; (4) social avoidance and isolation.

Using the IMAGE-HN

To access the IMAGE-HN, please use the below link: 

For more information about the development and validation of IMAGE-HN, please see:

Graboyes EM, Hand BN, Ellis MA, Huang AT, Nilsen ML, Pipkorn P, Marsh CH, Maurer S, Day TA, Sterba KR. Validation of a Novel, Multi-Domain Head and Neck Cancer Appearance- and Function-Distress Patient-Reported Outcome Measure. Otolaryngol Head Neck Surg. 2020. Jun 2:194599820927364. doi: 10.1177/0194599820927364. [Epub ahead of print]. PMID: 32482151